Child with liver transplant inspires with record-setting runs

At just seven years old, Patrick Lee has earned a Malaysia Book of Records title for “Most Public Runs Participation by a Child with Liver Transplant,” having completed 33 runs. This remarkable achievement is not just a testament to his determination but also serves as an inspiration for children facing medical challenges. Born with Alagille Syndrome and having undergone a liver transplant, Patrick’s journey has been one of courage, resilience, and a desire to make a difference.

According to his mother, Cordelia Lee, his first public run on 28th May 2023 marked the beginning of an extraordinary journey, with his participation in a 5km Sparkle Run. “To my surprise, he enjoyed the journey. It took him almost 2 hours to complete 5km as he needed multiple stops to rest. After he collected his first finisher medal, he became inspired to explore further runs,” Cordelia said.

Though he struggled initially, Patrick’s love for running blossomed from that day forward. He continues to push his limits, recording a personal best of 57 minutes for 5km and always aiming to break his own records.

Supporting children with special needs

Patrick’s story is not only about personal triumph but also about empathy and community. He is a proud member of the Little Fighter Runners, an NGO that encourages children with various medical conditions, such as cerebral palsy, autism, and ADHD, to participate in public runs. Through this group, he’s met other extraordinary children and discovered that running is not just a sport but a way to raise awareness and encourage others.

In 2024, Patrick took this mission further by becoming an advocate for Liver Transplant, Alagille Syndrome, Neurodivergent, and Rare Disease Awareness. His personal flag, emblazoned with an eagle and the motto “Never Give Up,” now serves as a symbol of his cause. His dream is to one day become a marathoner, even though he is currently too young to qualify for the 10km and 21km races.

Running for a greater cause

Patrick’s runs have also been dedicated to other children in need. This year, he ran in support of Khayla and Furqan, both of whom required liver transplants. “Patrick wanted to show his support and encouragement to these babies because he empathised on their circumstances. Khayla has already had her liver transplant and today is healthy.” Cordelia shared.

For Patrick, these children’s struggles resonate deeply, as he too faced life-threatening medical challenges at a young age.

Cordelia was so deeply inspired by Patrick’s journey that she channeled her emotions into writing and composing a heartfelt song titled Little Fighters. The song serves as a tribute to children facing medical, emotional, and learning challenges, and reflects the resilience and strength these young warriors display every day.

“Little Fighters represents children who have challenges medically, emotionally, physically, and have learning disabilities,” Cordelia shared. Her lyrics are a powerful reminder of the bravery required for children like Patrick, who continue to fight against overwhelming odds, overcoming both visible and invisible battles.

Diagnosed with dyslexia and ADHD this year, Patrick’s strength extends beyond the physical. He continues to attend therapies while postponing his primary education to focus on his health and development.

Spidey Patrick: Bringing joy to hospital wards

Outside of running, Patrick embodies the spirit of giving through his role as “Spidey Patrick.” Dressed as his favorite superhero, Spider-Man, Patrick has made it his mission to bring joy to sick children at the University of Malaya Medical Centre (PPUM) by distributing gift bags filled with stickers, dolls, and other tokens of kindness.

Having spent weeks in the hospital himself, Patrick understands the fear and isolation that can accompany long-term medical care. His efforts to bring smiles to the children have not gone unnoticed, earning him a Certificate of Appreciation from the Ronald McDonald House Charities at Hospital Canselor Tuanku Muhriz, UKM.

For Patrick, each step, whether in a race or in a hospital ward, is a reminder to himself and others to keep pushing forward, no matter the obstacles. His dream? To one day run for Malaysia and continue being a beacon of hope for children like him across the nation.